Tag / Alberta

by Jacqueline Chartier

Cruel and Unusual Punishment: The Impact of Danielle Smith’s Policies


I’m appalled that Premier Danielle Smith’s government is implementing certain policies that will increase the suffering of sick and vulnerable Albertans, including cancer patients. At what point does a government’s disregard for the marginalized become “cruel and unusual punishment” or almost contempt for the poor, sick and disabled?

I’m a long-term cancer survivor, understandably I have a deep connection with those in the cancer community and Albertans who must be hospitalized. Smith’s attack on public healthcare has been unending since she came to power Recent cuts have included limiting food services for outpatients using Alberta hospitals and treatment facilities. Patients visiting the emergency department and oncology patients having chemotherapy in short stay units are now being asked to bring their own food or money for purchasing some. 

At first, this government policy was even going to be implemented at the Alberta Children’s Hospital for pediatric cancer patients! However, as the outrage grew over “taking popsicles from cancer kids” an exception was finally made.

A woman with a young son undergoing cancer treatment posted the following on Facebook:

“After almost two years in this clinic, as our son continues to battle brain cancer, we have witnessed and experienced first-hand how a simple popsicle can calm a crying child who has just endured another needle poke, or an IV access, or a dressing change, or a lumbar puncture. A ginger ale works to calm a nauseous belly from all these chemo medications. 

How this policy passed into action, I can’t even imagine. Had they asked the nurses, the patients, the parents, maybe they would have realized they could have cut back a bit on the “meals” that often go untouched … but the popsicles? Why the ginger ale or crackers when they literally cannot stomach anything else? Don’t take away this small and sweet piece of joy to these unlucky kids enduring hell… find something else to pick on. Us Oncology families are dealing with enough.”

While Danielle Smith’s government is undermining public healthcare and basic comforts like food services for cancer patients, her lack of compassion has also been evident in other ways. For low-income patients or some cancer survivors with financially disadvantage backgrounds, the only option may be to apply for provincial government assistance. If cancer treatment has left a low-income individual unable to work, or they can work, but only part-time, they will typically qualify for the Alberta government’s Assured Income for the Severely Handicapped.

The AISH allowance is less than $2000 a month, but it’s what some chronically ill or disabled Albertan’s depend on to pay rent and buy food. The federal government recently announced the Canada Disability Benefit, a new program to supplement AISH and alleviate some of the poverty endured by recipients. This was welcome news for approximately 75,000 Albertans, but Smith and her government have made a cold-hearted and morally unacceptable decision.

Our premier has chosen to “claw back” the $200 a month supplement from the federal government. With over 70,000 people on AISH, her United Conservative government stands to take in $15,400,000 a month from the money that is supposed to be lifting some cancer patients and other chronically ill Albertans a little more out of poverty. Smith argues that AISH is generous and already enough for severely disabled Albertans to live on. However, this claim is without evidence, it also doesn’t consider inflation or the rising cost of most everyday essentials like food and rent. 

The appalling news was delivered in a blunt and callous letter sent out to all AISH recipients. First, the letter confirmed the Alberta government’s intention to claw back their new benefit.

“Income from the Canada Disability Benefit will be treated as non-exempt for AISH clients, meaning that your AISH benefits will decrease by the amount of the federal CDB that you receive, With the $200 from the CDB, AISH clients will receive a total monthly government income of $1,901, which is unchanged from their current monthly AISH benefits.”

Secondly, the correspondence stipulated that people on AISH must apply for their federal benefit to ensure that Premier Smith’s government can take it!

“As a client of the Assured Income for the Severely Handicapped (AISH) program, you are required to access all sources of income for which you are eligible, including federal programs such as the Disability Tax Credit and the new Canada Disability Benefit.”

My question is whether growing public pressure will ultimately cause the Alberta government to do the right thing and allow AISH recipients to keep their supplemental income—it’s revenue they desperately need and obviously deserve. Meanwhile, critics continue to raise concerns about the potential impact of Danielle Smith’s proposed changes to many social programs. 

Beyond specific policies, I question Smith’s overall approach to social issues, too often she demonstrates her lack of empathy and understanding for the challenges faced by marginalized groups.

by Jacqueline Chartier

Cancer Care is on Life Support While Patients Languish

For cancer patients in Alberta, and indeed for the entire cancer community, there’s a looming sense of dread—a feeling that the status quo is unsustainable and the system that provides care to us could soon collapse. 

The backlog of patients, due for the most part to the province’s shortage of oncologists, has become increasingly dire. An internal report that was presented to Alberta Health Services this May found that the number of new cancer referrals grew by 18 per cent between 2018 and 2023. Furthermore, the report revealed the number of patients seen outside the Alberta Health four-week target jumped by nearly 70 per cent over the last five years.

As the number of new cancer patients continues to outpace the number of new oncologists in the province, wait times are going up. Five years ago, patients requiring medical oncology care waited an average of 6.3 weeks for their first consult. In the first quarter of this year, the average wait time for it was 10.3 weeks. There have been several cases recently of Alberta patients dying before they could be formally assessed by a medical oncologist or start a treatment plan.

Steven Wong of Edmonton died in mid-July, leaving his wife without her husband, their three young boys without their father and a family without faith in Alberta’s health care system. Not once did Wong or his wife, Cici Nguyen, see or speak to a medical oncologist — doctors who specialize in the diagnosis and treatment of cancer — before his death.

The new Arthur J.E.Child Comprehensive Cancer Centre in Calgary sits unused and is scheduled to open later this year. With a shortage of cancer specialists the magnificent building alone may not be enough.

Athletic at age 41, Wong was a project manager for a real estate investment company and busy dad of three — he was a non-smoker and non-drinker and was healthy, as far as he knew. However, earlier this year a diagnosis of gastric cancer changed everything. An ER visit’s endoscopy had shocking news. It found a large stomach tumour. Wong’s tumour took him from heartburn to “inoperable” in just weeks. Referrals to the Cross Cancer Institute timed out as complications set in. Gastric bleeding. Perforation. A collapsed lung. Infection.

The stark reality is that Alberta has an excellent system of cancer care, but it’s functioning with tremendously limited resources. With resources as scare and labour intensive as they are, the triage of oncology is the tyranny of the healthiest, the earliest diagnosed, with priority going to the ones most likely to benefit in a life-saving way. Wong’s cancer was advanced, and almost surely not curable.

CiCi Nguyen is certain her husband would have died with, or without, the timely help of a medical oncologist. But she insists it’s just not right Alberta’s medical system failed to give Steven Wong the opportunity to prolong his life. “We never heard from the actual oncologist themselves or anyone from the Cross Cancer Institute explaining to us why we couldn’t see somebody,” said Nguyen. “He didn’t deserve the way he was treated at the end.”

As with many cancer survivors and cancer care specialists, I’m furious as well as demoralized— with much of my growing frustration directed at our provincial government. A report presented to Alberta Health Services CEO Athana Mentzelopoulos from Cancer Care Alberta confirmed a widening gap between cancer referral and cancer treatment in the province since the UCP government took power. Waits for oncology and treatment have surged over the past seven years, while the number of new cancer patients has significantly increased.

Dr. Alika Lafontaine, a former president of the Canadian Medical Association, has voiced his concerns regarding healthcare in Alberta.

The Cancer Care Alberta study points to several major factors affecting Alberta’s capacity for cancer treatment, one is that as medical science has advanced there is a growing complexity and chronicity of cancer care. However, the other factors cited are largely the responsibility of the provincial government, under their control is workforce and manpower as well as capital infrastructure and equipment.

The report’s author, Dr. Dean Ruether, medical director of community oncology in Alberta, said the province continues to struggle with wait times that are unacceptable and getting worse. “Physicians continue to advocate for their patients, express concerns over the delays in getting patients into our system and to treatment and are sharing their own distress at watching this problem grow,” he stated. Of course, patient complaints about delays are increasing, many are expressing their outrage to oncologists, to Alberta Health and the health ministry,

I wasn’t surprised when Dr. Alika Lafontaine, a former president of the Canadian Medical Association, took to social medica to stress just how serious the overall healthcare crisis has become.  “As a rural specialist who has been in Northern Alberta for the past 12 years, I can compare the state of healthcare today with rural healthcare when I first arrived here,” he wrote. 

“Capacity just wasn’t an issue in 2011. If an emergency came in, we handled it. There was no triaging of resources or placing patients in doom loops where they cycled round and round as they were promised care but never received it. It is clear we do not have enough skilled providers in the health system to accommodate demand. If more professionals leave to other places—private insurance, private care, another province, the US, or leave medicine entirely—health access will disappear.”  

by Jacqueline Chartier

Confronting Alberta’s Oncology Crisis

As a cancer survivor, who may face a recurrence at some point, I’m worried and outraged as I observe the looming cancer care crisis in Alberta. The Alberta Medical Association is warning that if the provincial government doesn’t take appropriate action soon, more patients will face delayed treatment or even die unnecessarily. 

In a recent interview AMA president Dr. Paul Parks emphasized that wait times in the province have increased, delaying treatment. “Sometimes cancers that could have been curable are no longer curable because of the delays” he said. “They are seeing cases and examples where, because of delays cancers that were localized and easily treatable initially sometimes spread and it becomes not curable, and ultimately some people are succumbing because of delays and that’s why we’re raising the alarm.”

Worst of all, the Alberta government doesn’t appear to be listening to the urgent pleas of health care professionals or patients. I’m disheartened by Alberta’s UCP government and their attitude. In my opinion there is an appalling lack of compassion or empathy that’s being demonstrated. Two years ago, before she was our provincial leader, premier Danielle Smith made a shocking comment in which she essentially blamed cancer patients for their condition.

Smith’s now infamous comment was made during a podcast with naturopathic doctor Dr. Christine Perkins. The two were discussing healthcare and their shared belief that there’s a need for both mainstream and naturopathic medicines.

“Once you’ve arrived and got stage four cancer and there’s radiation and surgery and chemotherapy, that is incredibly expensive intervention — not just for the system, but also expensive in the toll it takes on the body,” said Smith. “But, when you think everything that built up before you got to stage four and that diagnosis, that’s completely within your control and there’s something you can do about that that is different.”

It’s evident that the ideology of our premier and her government regarding healthcare and cancer treatment only compound the serious problems we’re already facing. To me this is completely unacceptable. In the case of cancer care, delays of even a few weeks can limit the range of treatment options. A patient who might have been a candidate for an exciting new treatment that could cure the disease may no longer be eligible. Instead, they face longer treatments, poorer outcomes or, even worse, may only be palliative.

The reasons for the crisis in cancer care are complex and they aren’t being adequately addressed by those in power. One cause behind the crisis can be explained through simple math, demand is outpacing supply. Official statistics indicate that cancer rates in the province are outpacing population growth. Alberta’s population is increasing rapidly, and more patients equal a need for more care. Alberta’s population is also aging, and older patients have a much higher incidence of cancer. 

Another important concern is that oncology is always evolving. Advancement in the field of oncology and better cancer treatment are things to strive for, but it can sometimes present a paradox. For example, technological innovation like genomic therapy can now save patients who would not have survived short years ago. This is wonderful news, but it adds a new population of complex patients who need special care after treatment, often over a period of years.

According to the AMA there are several issues that must be addressed related to cancer care. First, Albertans are facing reduced access to family doctors or generalist care. Too many patients at risk of cancer lack a family doctor or a consistent primary care provider. Add to this the pandemic disruption to screening and preventive measures. Today patients show up in emergency departments with advanced cancers that could have been detected and treated earlier. The number of new cancers being diagnosed in overcrowded emergency departments, which are simply not resourced for this type of care, has never been higher.

Furthermore, the organization overseeing Alberta’s doctors says the government is failing in its obligation to both recruit and retain oncologists There’s an urgent need for more oncologists as we face a severe shortage. Alberta has approximately the same number of cancer specialists in the province as we did 10 years ago, and the system is now experiencing acute strain.

All oncologists in Alberta are employees or contractors, meaning there can be no recruitment if spaces are not established first by the funder. An oncologist cannot just decide to move to Alberta and a community cannot simply hire one. Unfortunately, despite the increasing need, new oncology positions have not been created to keep pace. Calgary is supposed to open a new state-of-the-art cancer centre this fall. But I worry that if it opens on schedule The Arthur Child Cancer Centre might lack enough specialists to provide premium care to patients.

Obviously, our province must do everything it can to hang on to the oncologists we have today. Then, assuming more spaces become available, we must begin to recruit. The AMA says we need to deal with the problem that Alberta is not currently competitive with other provinces in retaining or attracting oncologists. We have fallen behind. Few new Alberta-trained graduate oncologists have stayed in the province in recent years. Meanwhile, other provinces like BC and Ontario are actively hiring as many cancer specialists as they can. The Royal College of Physicians and Surgeons of Canada will produce only 25 new oncologists for all of Canada this year. Alberta alone could use two-to-three times that many today.

by Jacqueline Chartier

Crushing the Third Wave

It’s around lunchtime on a windy spring day as I walk into the building and begin navigating the checkpoints that have been set up for the COVID vaccination clinic. As I make my way to the old gymnasium in the former children’s hospital, I’m relieved that I’ve managed to book an appointment—after several months of waiting it’s finally my demographic’s chance. Like hundreds of thousands, I had to first wait in anticipation while following the latest updates from the Alberta government concerning a complex vaccine rollout plan. 

I’m intensely aware as I’m about to be vaccinated, that our province has one of North America’s highest COVID-19 rates. Of course, it’s a dubious distinction and our third wave outbreak has garnered international attention in the media. In recent weeks American. television networks including CNN have covered the crisis and so has the venerable British newspaper The Guardian. As a cancer survivor and someone who is potentially vulnerable to complications from the virus, I’ve become extremely angry and frustrated.

Many physicians and leading public health experts have argued that it didn’t have to become this bad and that Albertans shouldn’t have to go through this nightmare. The third wave has been terrifying, especially for those of us who are not young or perfectly healthy, On the day that I’m ready to receive my first dose of Pfizer vaccine, Alberta has around 570 active cases of COVID-19 per 100,000 residents, more than twice the Canadian average. It’s the highest rate recorded anywhere in Canada at any point during the pandemic.

Regrettably, the province is now mired in its third major round of restrictions since the pandemic began last March. The latest surge has forced the reintroduction of strict, sweeping public health measures, closing all schools provincewide and temporarily shuttering many non-essential businesses. Most experts are citing a variety of contributing factors to explain exactly how we got into this situation or why Alberta’s third wave has become so severe. Here is their general consensus of what went wrong:

  • A premature easing of public health restrictions
  • An underestimation of COVID-19 variants 
  • An inequitable vaccine rollout
  • Non-compliance and non-enforcement regarding health restrictions
  • Refusing to prioritize the province’s schools and teachers

For the time being, I’ve joined a steady stream of hopeful Calgarians at the vaccination centre. There is light at the end of the tunnel I tell myself as I enter the gym and a woman takes my registration confirmation number and asks for my ID. Suddenly, I’m not just thinking about myself or my immediate geographic region, but the entire world. I wonder how many people will also get vaccinated today—both in Canada and around the globe. I believe in science and I understand mass vaccination will be one of the keys to ending this unprecedented pandemic that has claimed millions of lives.

Naturally there are segments of the population that are hesitant or sceptical about the new COVID-19 vaccines and are unsure if they should be immunized. History reveals that vaccine scepticism is as old as vaccines themselves. Increased resistance to compulsory smallpox vaccination during the 1870s and 1880s exposed the fragility of trust in both the political and medical establishment. The most radical opponents to vaccines used demonstrations and publishing to rally their cause. The situation is similar today, many doctors and infectious disease experts acknowledge that their work has been made more challenging due to the anti-vaccine movement. 

As I meet the diligent young nurse who is about to administer my injection, I know I trust both her and the medical and scientific community. Perhaps it’s my experience as a cancer survivor that allows that trust to come more easily. Sometimes I marvel that I’m alive because of medical science and what it’s capable of in the fight against cancer, during the search for a COVID-19 vaccine my sense of wonder was renewed. Never before in human history have vaccines for a pathogen entered final stage clinical trials and received approval for distribution to the public so rapidly. To me this doesn’t mean they cut corners or that proper clinical trials weren’t conducted— it’s only a testament to what the scientific community can accomplish when it works together toward one crucial goal.

Following my shot, I get up and move to the waiting area full of masked and freshly immunized patients. As a routine precaution people are asked to wait for at least fifteen minutes after their injection before leaving the vaccination centre. As I sit in my socially distanced chair, I think to myself that I will probably remember this moment for the rest of my life. Someone said that the stories you hold on to about the pandemic will be coloured by your own experience—but also by the experiences of those around you. In a way we’re already shaping our future pandemic narratives—the stories we will tell as individuals, as communities, as societies, and as nations about this epoch.